Not Standing Still's Disease

thecvsgirl: Just a reminder that if you have an illness it is completely okay to take lots of time...

Fri, 17 May 2013 20:08:23 -0500

Just a reminder that if you have an illness it is completely okay to take lots of time doing things for the person in the mirror. You are not being selfish. Try and just avoid this stress and only listen to people who make you happy. Don’t go over-exert yourself and try and do things to make other people happy. Your happiness is important too.

You gotta take care of number one if you want to be there for others.

thepensivebrony: “you shouldn’t be depressed, people have it worse than you” finally, after years...

Fri, 17 May 2013 16:28:28 -0500

thepensivebrony:

“you shouldn’t be depressed, people have it worse than you”

finally, after years of searching, the person with the worst life ever is found. formally, they are granted permission to be sad. but only them. only they have earned it. no sads for anyone else at all ever

I’m pretty sure that also means I can’t be happy since there are happier people in the world too.

So much love

Fri, 17 May 2013 14:05:19 -0500

So much love

socalfeminist: Pretty much what I was thinking when a guest...

Fri, 17 May 2013 12:01:41 -0500

socalfeminist:

Pretty much what I was thinking when a guest said checking into my hotel said, “I’m not racist but, that Day’s In down the street have Indian owners. Indians, you know, have prostitution rings and I didn’t want to put my family in that kind of danger.”

Yeah buddy that wasn’t fucking racism AT ALL.

Okay, I’m doing this next time this happens.

What do you think of TENS Units?

Fri, 17 May 2013 11:16:42 -0500

sickgirldiary:

Please give your thoughts about it. I’m thinking of getting one.

They can help some people, but they’re the most uncomfortable things I’ve ever used. I already have muscle spasm problems and having that hooked up just made it worse… not to mention how sometimes - and it’s rarely I understand when people are able to keep them in good condition or don’t use them often - but they can zap you. My body does enough of that for my taste on its own!

fuckyeahfeminists: deadpon-and-weible: impsexual: Because...

Fri, 17 May 2013 11:00:35 -0500

fuckyeahfeminists:

deadpon-and-weible:

impsexual:

Because telling fat people that they are in fact humans that deserve dignity and respect automatically means you’re ~*GLORIFYING OBESITY*~

By the way, don’t dribble on to me saying you worry about a fat person’s ‘health’. That’s just a bullshit excuse to voice your unwanted opinion on a fat person’s body considering you wouldn’t give a single flying fuckadoodle about someone’s health if they were skinny. Besides another person’s health is none of your damned business anyway. Run along now and preach to a choir that actually cares.

I’m going to be honest, so long as you’re not hurting anyone, you can eat soy sauce and milk duds all day long for all I care.

thank you so much for this comic imp.

this is all sorts of amazin

This times a bajillion

Not Standing Still's Disease: Dear able-bodied people,

Thu, 16 May 2013 23:46:24 -0500

Not Standing Still's Disease: Dear able-bodied people,:

hospitalgirl:

hospitalgirl:

Never be the person that comes out of a handicap stall to see a girl in a wheelchair waiting on you….especially if every other stall is open.

With hate,
The sick girl in the wheelchair who sat outside the handicap stall for 10 minutes waiting on a hospital staff member to…

I want you to understand that I do know what’s like to be sick and everyone think your fine,I was that for a long time. I had been yelled at for using my handicap tag because I walked out of the place, which I wouldn’t have been able to do if I couldn’t park there, I seriously would have passed out. That’s the only time I walked that day. I would have never posted or said any of this if I thought there was a chance I misunderstood her. That’s why I never post things like this. I could clearly see she was in the wrong, like you just said yourself. I have never been rude to anyone in that situation, never yelled, never did anything except sit outside the stall. Just like I would stand outside any stall I was waiting for if I was AB. I’m sorry that happened to you, sick people shouldn’t turn on eachothers just because you can’t see it. That’s why I don’t. Even though I can see the different demeanor of people who see me and are supposed to be using it and ones that aren’t. But I never say anything anyways incase I’m wrong. This is part of my life so I put it on my blog. If I see anymore of these I’m taking it down. Not because I think I’m wrong for this either.

I don’t think you really need to take it down. I am sad you’re offended that others are pointing out that they need to use these stalls too. Oftentimes, I reblog stuff and add these comments to support the people who I know follow me and the things I do to raise awareness of invisible diseases. I did that in this case for that reason, not to try to lecture you. I’m sure that it wasn’t like people were pissed off at you for your comments, but just trying to point out other needs as well. And we all have our own opinions and freedom of speech - again, don’t take down your stuff or I think the other comments. It is all about sharing how we each live our tough lives. We should celebrate each other’s battles won and plan our next steps together, always. Those with disabling diseases always should.

I was supposed to be in a wheelchair by age 8 and the fact that I’m still not both encourages me to keep fighting and hangs there like a dark cloud over my head reminding me it’s always there. That’s part of why I do so much to fight for awareness for all people with different abilities, AB or not, terminally ill or not.

fuckyeahfeminists: sophiabiabia: cognitivedissonance: lemondif...

Thu, 16 May 2013 23:25:07 -0500

fuckyeahfeminists:

sophiabiabia:

cognitivedissonance:

lemondifficult:

bidenette:

Le boom.

Oh snap

Wow

OOOOHHHHHHHH BURRNNN

Reblogging for the best ever GIF of my Joey B <3

theofficenbc: The Office Finale, TONIGHT at 8/7c. I cannot...

Thu, 16 May 2013 15:13:34 -0500

theofficenbc:

The Office Finale, TONIGHT at 8/7c.

I cannot watch this tonight. Oh god.

gerrybaboona: THIS IS THE MOST IMPORTANT PHOTOSET IN THE WORLD

Thu, 16 May 2013 07:39:45 -0500

gerrybaboona:

THIS IS THE MOST IMPORTANT PHOTOSET IN THE WORLD

Dear able-bodied people,

Thu, 16 May 2013 07:39:00 -0500

hospitalgirl:

Never be the person that comes out of a handicap stall to see a girl in a wheelchair waiting on you….especially if every other stall is open.

With hate,
The sick girl in the wheelchair who sat outside the handicap stall for 10 minutes waiting on a hospital staff member to stop doing her hair in the handicap stall mirror.

P.s yes, I purposely sit right there to make you feel bad…because you should.

While able-bodied people do use those stalls, so too do those with invisible illnesses for several reasons. I had this happen to me and I had been sitting in the stall crying barely able to walk and in some of the worst pain I’ve ever been in. I came out to get a lecture. She didn’t even care that my makeup had run all over my face and I had clearly been crying. I tried to explain about how the school’s bathrooms are so old and my legs couldn’t handle the very limited space the normal stalls offered that day, how just wearing clothes hurt. I tried to explain I’d been sick all my life, that I was on chemo, that I wanted to die I was in so much pain all the time. She just rolled her eyes and waited until I washed my hands, watching me with hate as I left the bathroom. When I got home, I seriously debated killing myself. I was failing medications. I was missing so much grad school. I was being ostracized by fellow students and ill people alike. I was living, a part of both worlds but not accepted by either. Later that week, I began the worst flare up of my entire life. I barely slept. I was covered in rash from head to toe and neither nakedness nor clothing was comfortable. I barely saw my now-fiance, the one person who can help me feel better, because I thought he would judge me too. I didn’t want him to see me that sick. I didn’t want him to leave me like I wanted to leave myself.

I am 25 now and though this happened a few years ago it haunts me still.

I’m sorry you had to wait so long for the bathroom. You could’ve said something. The woman I encountered could’ve said something. If the woman you encountered was doing her hair, her makeup, then she is wrong. I’ve encountered the same people when I need to use the handicapped or more accessible stalls myself - people who think those stalls exist for holding their purses while they do their hair in the mirror across the way instead of for people to actually go to the bathroom. It’s incredibly frustrating. I understand I have the luxury of being able to manage in a smaller stall sometimes, and people in wheelchairs don’t. But every time I get upset at things like this, I try to remember how unfairly I was judged, how someone else with an illness decided to yell at me instead of using compassion and noticing how loud my cries were in that stall, how smeared my makeup was. I don’t expect any person to be okay with waiting like that and I would’ve been upset too. But it’s not okay to judge people based on their appearances alone.

Handicaps aren’t always as visible as a wheelchair or a cane. I wish others could see the looks I get when I have to use my handicapped parking placard or when I give in to use my cane. I’ve had cops call me out. I’ve gotten stares from old ladies and Vietnam vets. They don’t even have to say what they’re thinking because their faces show - “She’s not handicapped. She’s using her father/grandfather/mother/great-grandmother’s placard illegally. She’s too young to have issues of this magnitude.” They don’t realize how hard it was for me to get the blue hanger, how many years I had to wait, how many years I thought about how I wasn’t bad enough to need it, how I still use it sparingly even in flare-ups. They don’t know how autoimmune arthritis types like Still’s disease can kill, let alone about the physical pain and deformity it has already caused me in 20 years. They don’t know I’ve been sick since I was 5, never remembering being normal or not being in pain.

No one understands what it is like to be ill when people think you look fine.

Photo

Thu, 16 May 2013 07:11:35 -0500

Photo

Wed, 15 May 2013 22:55:55 -0500

!روك القصبة Rock the Casbah is always cooler in Arabic.

Wed, 15 May 2013 22:14:16 -0500

!روك القصبة

Rock the Casbah is always cooler in Arabic.

Photo

Wed, 15 May 2013 21:34:36 -0500

Enlightenment can mean so many things. For me, I can’t...

Wed, 15 May 2013 21:29:40 -0500

Enlightenment can mean so many things. For me, I can’t quite explain what it means. Part of it means raising awareness for illnesses no one understands. Part of it means helping others live peaceful lives. Part of it is inner peace for myself. No matter what, I want to leave this world better than I found it. I will fight until my last breath to make things better for my baby niece, my relations to come, and all in the world.

I am so excited to be running this live chat for #WAAD with my...

Wed, 15 May 2013 21:02:25 -0500

I am so excited to be running this live chat for #WAAD with my fiance. Please come check it out on Monday!!

I am Angel and Maureen’s love child I swear

Wed, 15 May 2013 20:59:39 -0500

I am Angel and Maureen’s love child I swear

When you have to take immunosuppressant meds, this is what you feel like when people around you start coughing...

Wed, 15 May 2013 12:46:08 -0500

lifewithwegeners:

Working in a call center, this is my every day

I don't take people cursing at me in English seriously anymore.

Tue, 14 May 2013 22:49:33 -0500

arabicproblems:

Yuuuup